Resources

Browse by topic: Education, Lymphedema After Breast Cancer, Lymphedema After Cancer, Self-Management, Blogs / Podcasts, Advocacy, Community, Exercise, Breast Cancer, Massage Therapy

Education

• Lymphatic Education & Research Network Education, research and advocacy

• National Cancer Institutes: Lymphedema: General information, managing lymphedema, treatment options, current clinical trials

• Mayo Clinic: Lymphedema Definition, symptoms, causes, treatment, support

• Vascular Disease Foundation: Lymphedema (PDF) Definition, causes, symptoms, risk factors, diagnosis, treatment

• Cleveland Clinic: Lymphedema Definition, signs and symptoms, diagnosis, treatment, general guidelines for patients with lymphedema

• The Lymphoedema Support Network (UK) Represents, supports and empowers people affected by lymphoedema

• Memorial Sloan Kettering Cancer Center: Day to Day Coping with Lymphedema (Video series) understanding the lymphatic system, lymphedema causes, lymphedema and cancer treatment, skin care in reducing risk, exercise, diet, air travel, stress

• American Cancer Society: Lymphedema page about lymphedema.

• LymphNotes.com is an independent source of objective information about lymphedema.

Lymphedema After Breast Cancer

• WebMD: Lymphedema After Breast Cancer General information, risk reduction, signs & symptoms

• American Cancer Society: Lymphedema: What Every Women with Breast Cancer Should Know General information, signs of lymphedema, swelling after surgery or radiation, risk reduction practices for those at risk and those who have lymphedema

• Living Beyond Breast Cancer: Guide to Understanding Lymphedema (PDF) General information, early signs, risk reduction, treating lymphedema, the emotional side effect of lymphedema, paying for lymphedema care, resources

• Susan G. Komen: Lymphedema Definition, symptoms, diagnosis, treatment, exercise, risk reduction, axillary dissection, sentinel node biopsy, breast reconstruction and lymphedema

• BreastCancer.Org: Lymphedema Definition, signs and symptoms, when and where lymphedema can occur, risk factors, risk reduction, exercise, infection, evaluation and diagnosis, treatment, finding a therapist

• Step Up, Speak Out! advocacy, support and resources

• National Lymphedema Network Position Paper: Screening and Measurement for Early Detection of Breast Cancer Related Lymphedema

• Lymphedema After Breast Cancer: (YouTube) by Beth Erhardt, OTR, John Hopkins Medicine

• Lymphedema: Breast Cancer: (YouTube) by Peg Maas, PT, Swedish Medical Center

• Lymphedema After Cancer Treatment (YouTube) by Josh Levin, President LympheDIVAs for Lymphatic Education and Research Network (LER&RN)

Lymphedema After Cancer

• Dana-Farber Cancer Institute: How to Prevent and Manage Lymphedema Definition, risk reduction, management

• American Society of Clinical Oncology: Buildup of Fluid or Lymphedema Symptoms, causes, diagnosis, treatment

• Livestrong Foundation: Lymphedema Symptoms, risk reduction, treatment options

Self-Management

• National Institutes of Health: Lymphedema (Also in Spanish) Taking good care of your skin; protecting skin from injuries, taking care of your feet, taking care of cuts and scratches, taking care of burns, when to call the doctor

• National Lymphedema Network Position Paper: Risk Reduction Practices

• Do’s and Don’ts for Lymphedema of the Arm

• Lymphedema Risk Reduction Tips

Blogs/Podcasts

• Lymphedema Blog

• MyLymphieLife

• Lymphedema Girl: My Life with Primary Lymphedema

• My Lymph Node Transfer

• Lymphedema Mavens

• Little Miss Lucia’s Lymphoedema Life

Advocacy

• Lymphedema Treatment Act (HR 3877) this proposed bill will improve coverage for the treatment of lymphedema from any cause

Community

• Lymphedema Community a social network for patients, therapists, physicians and industry professionals

• BreastCancer.org Discussion Boards: Lymphedema Risks, tips for prevention and info about products that can address the symptoms of lymphedema

• LymphNotes.com Forums an online community to discuss lymphedema questions both physical and emotional

• Lymphedema People A site for people with lymphedema, made by people with lymphedema.

Exercise

• National Lymphedema Network Position Paper: Exercise

• Memorial Sloan-Kettering: (YouTube) Exercise and Lymphedema Risk Reduction

• Exercise for Lymphedema by Molly Nettles, OTR/L, CLT-LANA, STAR/C, Director of Lymphedema Services at Georgia Regents Health System

• Upper Extremity Lymphedema Home Program (YouTube) by Michigan State University Rehabilitation

• LymphNotes Lymphedema Exercise Tips

• Ocean Soul Yoga Learn about yoga for cancer recovery and purchase the new Yoga for cancer recovery DVD created by breast cancer survivor and LympheDIVAS client Claire Petretti.

• Pink Ribbon Program is dedicated to promoting a healthy lifestyle and positive body image to all breast cancer survivors. They will will help stretch and strengthen the shoulder, chest, back, and abdominal muscles, allowing women to regain full range of motion to those areas affected by breast cancer surgery.

• Breast Cancer Yoga Easy to learn breathing CDs for breast cancer recovery and lymphedema management. CDs professionally recorded by Diana Ross, a breast cancer thriver.

Breast Cancer

• Young Survival Coalition (YSC) is a nonprofit dedicated to the concerns and issues that are unique to young women and breast cancer.

• Living Beyond Breast Cancer (LBBC) is a nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life.

• Breastcancer.org is a nonprofit organization dedicated to providing the most reliable, complete, and up-to-date information about breast cancer.

• American Cancer Society: Breast Cancer provides general information on breast cancer.

• "The Empty Cup Runneth Over" is a book written by Cindy Papale and Sabrina Hernandez focused on issues surrounding breast cancer. Find the LympheDIVAs inside!

• Pink-Link is an online breast cancer support group.

• Beyond Boobs Inc supports young women (pre-menapausal) who have been diagnosed with breast cancer and educates women of all ages to take charge of their breast health.

• Bereaved Families Relief Network (BFRIN) is a non-profit organization providing product grants and counseling to women diagnosed with breast cancer and lymphedema.

• PearlPoint Cancer Support provides personalized and compassionate guidance to any adult impacted by cancer, free of charge.

• HIS Breast Cancer Awareness is a non profit organization offering insight, education and awareness on male breast cancer.

• BostonCancerSupport.org  is Greater Boston's non-profit cancer resource. Find local support groups/rehabilitation centers; transportation to treatments; financial aid and more.

• BreastInvestigators.com  is dedicated to taking the mystery out of breast cancer. Breast Investigators provides tools to individuals, breast cancer patients, cancer survivors and previvors to help them make the best, most informed decisions about their breast health and well being. The website provides information, blogs, events and a directory listings of healthcare providers, complementary care providers, emotional support and assistance.

• Lacuna Loft is a 501(c)3 nonprofit that encourages, empowers, and connects young adult cancer and chronic illness survivors and caregivers around the globe, 24/7.  Lacuna Loft provides online access to wellness resources, lifestyle encouragement, and peer support community that young adults need to overcome their challenging health and life circumstances, and thrive.

 

Massage Therapy

• A Caring Touch for Cancer is a website designed for patients to gather information about the benefits of massage performed by a trained oncology massage therapist during treatment for cancer.